No announcement available or all announcement expired. Owen Lea Foundation | Serving Families Living with Neuroblastoma

Our Mission

The Owen Lea Foundation exists to provide support to families Living with Neuroblastoma. We are a 501(c)3 non-profit organization founded in Virginia by the parents, friends and family of Owen Scott Lea. With Owen's guidance from Heaven above, we continuously reach out to any and all families who have a child living with Neuroblastoma.

Owen’s Story

In October, 2003, Owen was hospitalized for a severe bone infection in his leg. After two weeks of being non-responsive to antibiotics, a chest x-ray was done to rule out pneumonia. A large mass was found in his chest and a biopsy confirmed one of every parent’s worst nightmares. Owen was diagnosed with stage IV Neuroblastoma – a very rare and difficult to treat form of childhood cancer.

Who is Waffie?

Waffie is the official logo and mascot of the Owen Lea Foundation. He is a small stuffed dachshund that was picked out by his big sister Shannon and was her present to her new little brother on the day he was born. Waffie was the first gift Owen ever received. Before he could talk, Owen would carry his favorite little animal around saying “Waf, waf”, as in the sound a dog makes.

Dedicated to Serving Families Living with Neuroblastoma

Our Mission is to Help Those Who Need It

Owen was diagnosed with stage IV Neuroblastoma just two weeks after his second birthday. After nearly six years of countless rounds of chemotherapy, radiation, numerous surgeries, a stem cell transplant, and two clinical trials, on August 26th, 2009, Owen lost his battle and heaven gained another angel.

The Owen Lea Foundation was established to provide support to families living with Neuroblastoma. The financial and emotional burdens of treating a child with cancer can be devastating. Your assistance will help families alleviate some of these overwhelming costs that are not otherwise covered by insurance, such as travel to and from treatment centers and co-pays for necessary medicines. Sadly in many cases this money also replaces life insurance which is unobtainable for families in this situation. It is our hope that with your assistance, these families can focus their energy where it is needed the most- the care of their child.

The Owen Lea Foundation is an all volunteer run organization. 100% of your donation goes directly to the families who need it. We are a 501(c)(3) IRS registered charity and 100% of your donation is tax deductible. We are based in Fredericksburg, Virginia, and while we focus on local families, we provide assistance to families nation-wide.

Help Support the Owen Lea Foundation

We appreciate all of your support.

Mail Donations To:

The Owen Lea Foundation
P.O. Box 5259
Fredericksburg, VA 22403

Owen Lea Foundation